The agony of it all

I'm not sure if it was seeing the ambulance go to the back entrance of the same rehabilitation hospital I stayed at after my stroke. I'm not sure if it was the conversation I had with the leasing office about my decision to vacate my second-floor office. I'm not sure if it was losing my balance five times doing physical therapy today, but today was a very emotional day.

It wasn't until I got home, hours after I talking with the leasing office, few hours after physical therapy and seeing the ambulance, that it hit me. I was sitting on the floor in the middle of my living room and in front of me were boxes and tote bags full of things from my second-floor office. That visual was all it took for me to truly see what was going on.

This day was emotional because in so many ways I had to face the reality of all that the stroke has taken away from me. It was almost like seeing my career in boxes. The ambulance reminded me of where it all started. Losing my balance in Physical Therapy reminded me I'm still not steady on my feet. At that moment, in that lonely moment, in the restraint of the four walls of my living room, I was reminded that this rehabilitation is not temporary. Recovering from a stroke is not temporary work.

Many thought I should "be fine" by now. Others told me they thought I'll be doing stairs by now. Even my doctors thought I could drive by now. My kids and I would love to do all the physical things I did in the past and for me to take them to all the places we went. We all hoped. But as my temporary handicap placard got replaced by a permanent one, and I resumed with vision therapy, reality set in.

This is the reality seven months after the stroke: I'm still not allowed to drive. I'm having more balance issues these days, and it has delayed my transition from the walker to a cane. Although my speech and vision have improved, my short-term memory and my left eye are still of concern. The pain on my left leg often makes me feel foreign to my body. It is as if I have two bodies living inside of me because my left side and my right side operate on two different functioning levels. This is my reality.

After reality set in, in that lonely living room, my thoughts shifted from the loss to the gains. I thought of how strong I've been. My stroke strengthened me, so instead of looking at all that this stroke has taken away, I will hold on to the strength I've gained from all of this. Tenacity. Perseverance. Faith. Hope. Friendships. Advocacy. And those are things that nothing will ever take away from me.

​Chou Hallegra, Stroke Survivor, Counselor & Consultant
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Credits:Photo by Zoe Deal on Unsplash